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University of Alaska Fairbanks :: Office of Research Integrity :: IRB :: Recommended Readings

Recommended Readings

The articles, books and websites recommended here provide an excellent starting point for classroom or research team discussions about the ethical conduct of research with human subjects, participants, co-researchers, etc.

Tuskegee Syphilis Study  

  1. Fred D. Gray. 1998. The Tuskegee Syphilis Study. NewSouth Books. Montgomery, AL. ISBN 1588380890.  

  2. James H. Jones. 1993. Bad Blood: The Tuskegee Syphilis Experiment. The Free Press. New York, NY. ISBN 0029166764.  

  3. Centers for Disease Control and Prevention website. The Tuskegee Timeline. This is a very brief overview of the events of the Tuskegee Syphilis Study.

  4. The Tuskegee University National Center for Bioethics homepage has additional information about the study and related events.

Barrow Alcohol Study  

  1. Samuel Z Klausner. 1979. The Inupiat: Economics and alcohol on the Alaskan North Slope: a final report on alcohol use in Barrow. Center for Research on the Acts of Man. Philadelphia, PA. ASIN: B0006XDVN4.  

  2. American Indian and Alaska Native Mental Health Research devoted a special issue of the journal (vol.2, no.3, 1989) to the Barrow Alcohol Study. The lead article by Foulk and the articles by Attneave, Beauvais, Trimble, and Mohatt have been recommended by Jim Allen; however, each article in the issue lends unique insight and perspective. This journal is available in Rasmuson Library.

  3. New York Times articles on the Barrow Alcohol Study. January 22, 1980: Alcohol Plagues Eskimos by Dava Sobel. January 29, 1980: Eskimos Irate Over Alcoholism Study by unknown.

Havasupai Diabetes Study

  1. Rex Dalton. 2004. When two tribes go to war. Nature, vol. 430 (July 29): 500-502.

Airforce Aeromedical Laboratory Thyroid Function Study (Iodine 131)  

  1. Committee on Evaluation of 1950s Air Force Human Health Testing in Alaska Using Radioactive Iodine-131, Commission on Geosciences, Environment, and Resources, Commission on Life Sciences, National Research Council. 1996. The Arctic Aeromedical Laboratory’s Thyroid Function Study: A Radiological Risk and Ethical Analysis. You can buy or read this book for free online at http://newton.nap.edu/catalog/5106.html.

  2. A free executive summary is available at http://newton.nap.edu/execsumm_pdf/5106.  

Genographic Project (National Geographic Society)

This study is currently (December 2006) under review by the Alaska Area Institutional Review Board, sponsored by the Indian Health Service.

  1. New York Times Article: December 10, 2006: DNA tracking project stalled while benefits are debated by Amy Harmon. (Reprinted in the Daily News-Miner 12/11/06).

  2. National Geographic, Genographic Project Website.

Other References  

  1. George J. Annas and Michael Grodin. 1992. The Nazi Doctors and the Nuremberg Code: Human Rights in Human Experimentation. Oxford University Press. New York, NY. ISBN: 0195101065.

  2. Jon Harkness, Susan E. Lederer and Daniel Wikler. 2001. Laying Ethical Foundations for Clinical Research. Bulletin of the World Health Organization, vol. 79 (4): 365-372. This article provides a reproduction and discussion of Henry K. Beecher. 1966. Ethics and Clinical Research. New England Journal of Medicine, vol.274(24): 1354-1360.

  3. Thomas Blass. 2004. The Man Who Shocked the World: The Life and Legacy of Stanley Milgram. Basic Books. New York, NY. ISBN: 0738203998.

  4. Ngina Lythcott. 2000. Changing the Research Paradigm: Community Involvement in Population-Based Research. Cancer Supplement, vol. 88(5): 1214-1216.  

  5. Gerald V. Mohatt, et al. 2004. Unheard Alaska: Culturally Anchored Participatory Action Research on Sobriety With Alaska Natives. American Journal of Community Psychology, vol. 33(3/4): 263-273.  

  6. Mohatt, G.V., Thomas, L.R., People Awakening Team. (2005). "I wonder, why would you do it that way?": Ethical dilemmas in doing participatory research with Alaska Native communities.  In J.E. Trimble & C.B. Fisher (Eds.), Handbook of Ethical Research with Ethnocultural Populations and Communities. New York: Sage.

  7. Norman K. Swazo, "Research Integrity and Rights of Indigenous Peoples: Appropriating Foucault's Critique of Knowledge/Power," Studies in History and Philosophy of Biological and Biomedical Sciences, 36, 2005, 568-584.

If you would like to recommend additional readings please email Kelly Hochstetler.

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This site was last updated February 1, 2007 by Kelly Hochstetler